Shifting Gears

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It has been a while and I have been busy. Busy getting a bionic foot, climbing Kilimanjaro, cruising the Danube with my mom, busy in Denali national park on Ruth Glacier training for a 2018 summit with AMS and some fellow she-veterans. SHeroes.

Oh. And busy being a full-time patient who sometimes goes from the hospital to a wine event, or occasionally takes a week off for a press trip or adventure.

Don’t feel bad for me. I’ve finally got this. It’s been daunting and tough and what I really wanted when I was finally diagnosed with multiple TBI was to rap with someone else who was going through the treatment process. Talking to folks who have been rehabbed are great resources, the interweb is good too, although I am still having a lot of trouble reading with comprehension.

Lucky for me, most of my work is written from experience. I am a “doer” out of necessity, but it’s not something to complain about. Some people read, listen or see to learn. I need to “DO.” And so, all my fitnessy things, cooking, recipe-testing, and travel adventures are going pretty well.

With luck, by the time I am done my rehab I will be able to see straight, balance and be coordinated like the olden days, be able to move my hand (quickly), be able to sleep and breathe properly. Also, be able to find words. It’s easy to miss, or you may think I’m just a bit restless, but next time you talk to me observe how my eyes dart around searching for the word I want.

Of course you would know none of this if I hadn’t just told you because I “look fine and am reasonably articulate.” And because that excuse has been handed to me so many times as the reason I wasn’t properly diagnosed sooner, I’m using this site and the reasonably sizable following it has to talk about what is going on here. I have unseen ailments. I am being rehabbed for multiple TBI’s that significantly changed my life and sent me into uncharted territory that was difficult to navigate; a place where I felt confused, lost, desperate, and angry. No more of that. I’m dissatisfied with healthcare I’ve received in the past, but for now I set that aside. I want to focus on getting better, working when I can, and making sure I share any advice, logic or benefits I can get my hands on to help other people with an unseen ailment. Or any ailment. There seems to be a stigma to disclosing full-time patient status. I’m breaking that, thank you very much, and proud to do so because I think it might help someone.

So there you have it. I look forward to sharing more and I look forward to hearing from others dealing with similar problems.


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